If you or a loved one has been diagnosed with a terminal neurological disease, the decision of whether or not to continue aggressive medical treatment after effectiveness becomes questionable, is one of the hardest choices imaginable. The ever-changing emotions and feelings of uncertainty, as well as the complexity of treatment and care options, makes it challenging to choose the best course of action for you and your family. Your search for the absolute best care and support does not end when you are told that curative treatment options are no longer recommended. The good news is that quality hospice care and palliative care services are widely offered for patients with terminal neurological diseases and offer comprehensive pain and symptom management along with end-of-life care that patients and their families need.
Taking the time to learn about hospice and the level of care it offers to patients with life-limiting neurological diseases, such as Parkinson’s Disease, Multiple Sclerosis, Muscular Dystrophy and Huntington’s disease, will help you understand all of the available options and better prepare you to make the time you have more comfortable.
While there are treatments and medical procedures that may help to extend the life expectancy of a patient with a chronic neurological disease, once these treatment options have become ineffective, it becomes a very personal decision for the patient about how long they want to continue the fight. When the symptoms of the disease or side effects of treatment or medication outweigh the possible benefits, that’s when many patients decide to stop aggressive medical treatment and consider alternative options like hospice care.
Hospice Care for MS, MD and Huntington’s & Parkinson’s disease
Hospice care is specialized type of medical care for people with life-limiting illnesses, like Parkinson’s disease, Multiple Sclerosis, Muscular Dystrophy, Huntington’s disease or other types of neurological disorders. It focuses on providing relief from the symptoms, pain and stress of the disease. The goal is to improve quality of life for both the patient and their family.
At Alliance Hospice we recognize the courage it takes to help a loved one who is suffering from a life-limiting illness. We also understand the physical and emotional stress it places on you to care for this loved one.
If you are reading the information on this web page, chances are you, or someone you love, has been diagnosed with a life-limiting neurological disease or you are a family member affected by a devastating neurological disease, and treatment is either under way or being considered. Your search for answers to important questions about care and support for your loved one do not stop when you are confronted with the realization that there may be no available curative treatment options. The physical hardship of the neurological disease happens to the patient but this illness affects the family as a whole. Alliance hospice care for patients with neurological diseases is here to help you and your loved ones.
We provide comprehensive hospice care and support services 24 hours a day, 7 days a week through our compassionate, experienced and well-trained interdisciplinary team of hospice nurses, home health aides, hospice social workers, therapists, bereavement counselors and volunteers. We always put patients and families first and strive to make every interaction with you and your loved one more meaningful.
Alliance Hospice recognizes the emotional toll and immense courage it takes to help a loved one who is suffering from a terminal illness like Parkinson’s Disease, Multiple Sclerosis, Muscular Dystrophy, Huntington’s disease and other types of life-limiting neurological disorders. Call Alliance today to see if hospice care is an appropriate option.
When should hospice care be considered for patients with terminal neurological diseases?
Diseases like Parkinson’s disease, Multiple Sclerosis, Muscular Dystrophy, Huntington’s disease and other types of life-limiting neurological disorders can take their toll on a family, and it’s vital to understand what care and support options are available.
Regardless of how accomplished a patient’s physician is or how loving and supportive the family has been, there may come a time when continued aggressive medical treatment may be looked at as more of a burden than a benefit for all parties involved. When patients enter the end-stages of a degenerative neurological disease they experience a variety of symptoms including partial or complete paralysis, muscle weakness, partial or complete loss of sensation, seizures, difficulty reading and writing, poor cognitive abilities, unexplained pain, decreased alertness, headaches, blurry vision, fatigue, changes in behavior, numbness in the legs or arms, changes in coordination or balance, weakness, slurred speech, tremors and difficulty swallowing. . A rapid disease progression or other life-threatening complications in the past year, may indicate that this is a late stage of the disease. Even if the patient has chosen to discontinue aggressive medical treatments for their particular neurological condition, their comfort, safety and dignity need to be preserved along with addressing their personal concerns and wishes. Our interdisciplinary Hospice care team can provide care and support for patients and their families.
The patient’s neurologist or physician may recommend hospice care when the time is appropriate. Oftentimes, patients and their families may have to be their own advocates to initiate the hospice care they desire. The patient, their family, or the patient’s doctor may request an evaluation and consultation with Alliance to determine if hospice is an appropriate option.
Benefits of Hospice Care for Patients with Terminal Neurological Diseases
The Alliance hospice team will evaluate the patient’s medical status and revise their care plan as the patient’s condition and symptoms change. The goal of hospice care for patients with life-limiting neurological diseases is to treat pain and other symptoms and relieve the physical and emotional stress to ensure the greatest level of comfort for our patients and their families.